About Us

Learn more about our foundation and Beta-Mannosidosis

Beta-mannosidosis is a rare inherited condition that disrupts how the body breaks down certain sugars. To learn more, click the link below.

Latest news highlights featuring patients and families from our organization.

Learn more about our team members and their backgrounds.

Follow patients in their Beta-mannosidosis journey.

On this page, you can find past TLEP Newsletters and to share with your friends and family.