This September, we’re taking on Mount Kilimanjaro to raise $100,000 for treatment development for children living with Beta-Mannosidosis. Every step represents the uphill battle rare disease families face every day while waiting for a treatment.

There are many ways to get involved:

• Become a sponsor
• Host or join a Climb4Rare hike in your community
• Share your own hike by holding up a #Climb4Rare sign at the summit and posting your photo
• Make a donation to support treatment development

We offer multiple sponsorship levels:

Summit Sponsor – $5,000+ (includes a flag placed at the top of Kilimanjaro)
Ascent Sponsor – $2,500
Base Camp Sponsor – $1,000

Every contribution helps advance research, accelerate treatment development, and bring hope to children and families affected by Beta-Mannosidosis.

Join the movement. Support the climb. Help us reach the summit—for them.

The Children’s Rare Disease Alliance (CRDA) is supporting The Lost Enzyme Project by creating a simple way for communities to help fund treatment development for rare diseases.

Through this checkout charity, customers can round up their purchase to the nearest dollar—turning everyday transactions into meaningful progress for children still waiting for life-changing therapies.

CRDA is working with local businesses to bring this program into stores, creating an opportunity for friends and family to fundraise alongside The Lost Enzyme Project in their own communities. If you are a business owner—or know someone who may be interested—we would love to connect.

Together, we can turn small change into life-changing treatments. Visit the official CRDA website to learn more.

Children’s Rare Disease Alliance (CRDA) is a checkout charity supporting The Lost Enzyme Project by creating simple, community-driven ways to help fund treatment development for rare diseases.

This program gives friends and families a meaningful way to fundraise alongside The Lost Enzyme Project in their own communities. By partnering with local businesses, CRDA enables customers to round up their purchases to the nearest dollar—turning everyday transactions into real progress for children still waiting for life-changing therapies.

If you are a business owner—or know someone who may be interested—we would love to connect.

Together, we can turn small change into life-changing treatments. Visit the official CRDA website to learn more.

Maximize your impact with corporate matching.

Many employers offer matching gift programs that can double—or even triple—your donation to The Lost Enzyme Project. This simple step can significantly accelerate our efforts to develop a life-saving treatment for children with beta-mannosidosis.

By participating, you’re not just giving—you’re multiplying your support. Check if your company offers a matching program, request that TLEP be added as a verified charity if needed, and help spread the word within your workplace.

Every dollar goes further. Every action brings us closer.

Double your donation. Double your impact.

We’re excited to offer our “Stronger Than Life Is Hard” merchandise on our website in support of The Lost Enzyme Project and the development of treatments for rare diseases.

This campaign also gives friends and families a meaningful way to fundraise alongside The Lost Enzyme Project. If you’d like to make a larger impact by starting a t-shirt campaign in your area, please contact us—we’d love to help you launch a fundraiser in your community.

Together, we can turn a message of strength into meaningful progress.