Privacy Policy

Who we are

The Lost Enzyme Project is a nonprofit organization dedicated to raising awareness and supporting families affected by Beta-mannosidosis. Our website address is: https://thelostenzymeproject.org.

Information We Collect

1. Comments

When visitors leave comments on our site, we collect:

  • The data entered in the comments form
  • The visitor’s IP address and browser user agent string (to help with spam detection)

An anonymized string (hash) of your email address may be sent to the Gravatar service to check if you are using it. You can review Gravatar’s privacy policy here: https://automattic.com/privacy/. Once your comment is approved, your profile picture will be publicly visible in the context of your comment.

2. Media

If you upload images to our website, please avoid uploading images with embedded location data (EXIF GPS), as visitors can download and extract this data from the images.

3. Cookies

We use cookies to enhance your experience:

  • Comments: If you leave a comment, you may opt-in to saving your name, email, and website in cookies for convenience. These cookies last for one year.
  • Login Cookies: If you visit our login page, a temporary cookie determines if your browser accepts cookies. This cookie is discarded when you close your browser.
  • Logged-in Users: Login cookies last two days, and screen options cookies last one year. Selecting “Remember Me” keeps your login active for two weeks.
  • Publishing: If you edit or publish an article, a cookie storing the post ID is saved. It expires after one day.

4. Embedded Content from Other Websites

Articles on our site may contain embedded content (e.g., videos, images, articles) from third-party websites. These websites may:

  • Collect data about you
  • Use cookies
  • Embed additional third-party tracking
  • Monitor your interaction with their embedded content

If you are logged into those third-party websites, they may track your interactions.

How We Use Your Data

Who We Share Your Data With

  • If you request a password reset, your IP address will be included in the reset email.
  • Visitor comments may be checked through an automated spam detection service.

How Long We Retain Your Data

  • Comments: Retained indefinitely so follow-up comments can be automatically approved instead of moderated.
  • Registered Users: If you create an account, we store your personal information in your profile. You can edit or delete your information anytime (except for your username). Website administrators can also manage this information.

Your Rights Over Your Data

If you have an account on our site or have left comments, you can request:

  • An exported file of the personal data we hold about you.
  • The erasure of any personal data we store, except for data required for administrative, legal, or security purposes.

To make a request, please contact us at admin@thelostenzymeproject.org

Where Your Data Is Sent

Visitor comments may be checked through automated spam detection services.

 

Changes to This Privacy Policy

We may update this Privacy Policy periodically. Any changes will be posted on this page with an updated effective date.

If you have any questions or concerns about this Privacy Policy, please contact us at admin@thelostenzymeproject.org