Happy St. Patrick’s Day

I am happy to report Oliver had a great night.  We have found that he gets very tired and cranky from the pre-meds given before the ATG, but after a snooze he wakes up happy.  And last night he woke up happy and with no fever!  There were no fevers at all through the night.  He was a bit of a night owl, since he’d had that late nap. Still, at midnight he fell asleep and slept till almost 8am! He didn’t even wake up when the night nurse came in for blood draws and vitals. No vomiting either! He has been happy today, playing with his hot wheels, and bowling.  I am hoping tonight is a repeat of the last, so that he is well rested for Wed. when he begins the Fludarabine and Busulfan (chemo). Wednesday evening will be a cocktail of all 3 drugs, then the ATG drops off the list. With any luck he will tolerate the chemo as well as the ATG. That first night was rough (most likely because it was the largest dose) but he seems to have adjusted to it. Thankfully Wednesday will mark our half-way point with the chemo protocol. Sunday is a day of rest, no chemo, and then Monday will be BMT. Oliver helped me place an Amazon order for some new Hot Wheels… gotta love technology.  Even though we may be in isolation, we are pretty connected to the world, which is a good feeling.  Oliver hasn’t asked to leave. He seems to understand that this is where we need to be and that is ok.  There is still lots of fun to be had, even in a hospital room. Case in point: he is building  quite the city for his hot wheels out of blocks, and is very happy.