Oliver-My Story

Oliver was diagnosed with a very rare metabolic disorder, Beta-Mannosidosis, the end of 2014 at the Mayo Clinic. We traveled to Minneapolis to visit the University of Minnesota Fairview Children’s Hospital in January, 2015, to discuss treatment; an experimental bone marrow transplant. His HLA typing was taken, and a few weeks later we were given the wonderful news that there were several perfect matches from both cord blood units as well as donors. Our doctor, Dr. Paul Orchard, decided to use a 6/6 cord blood unit, which is the “gold standard” for transplant. Oliver will be in the care of the University of Minnesota Fairview Children’s Hospital for the next seven months. Once we return home, isolation will continue for the safety of his newly developing immune system, but hopefully, by March of 2016, Oliver will be back to his normal healthy self; finishing up the tail end of the preschool year at the Learning Academy, and getting ready for a fun filled summer! !!!