Partners

We deeply appreciate the support and collaboration of our partners in the Lost Enzyme Project. Your contributions are essential to our success.

CoRDs

The Lost Enzyme Project partners with the Coordination of Rare Diseases at Sanford (CoRDS) to advance research for Beta-mannosidosis and related disorders. By encouraging patient participation in the CoRDS registry, we help connect families with researchers, drive scientific progress, and support the search for better treatments.

Kimonis Lab at UCI

Kimonis Lab is at the forefront of rare genetic disorder research, specializing in advancing the diagnosis and treatment of conditions like Beta-Mannosidosis. Through innovative studies and clinical expertise, they are driving progress toward better patient outcomes.

JCR Pharmaceuticals

JCR Pharmaceuticals is pioneering breakthrough therapies for rare diseases, developing innovative treatments to improve outcomes for patients with conditions like Beta-Mannosidosis.

ISMRD

ISMRD is a global advocate for rare diseases, dedicated to advancing research, awareness, and support for patients and families affected by mannosidosis and related disorders.

Our Sponsors

We are deeply grateful to the generous individuals, families, and organizations who stand beside us. Your support fuels research, uplifts families, and brings us one step closer to treatments and cures. Thank you for believing in our mission and being part of this journey.